Foundation that seeks to cure the disease

In 1992, his 2-year-old son Rocco was diagnosed with thalassemia, an incurable genetic blood disorder that causes severe anemia and requires constant, painful, invasive treatments. Though the Girondis’ two other children are disease-free, no one in the family is a compatible donor for a bone-marrow transplant, which may be Rocco’s best hope for survival.
Unhappy with the medical profession’s handling of Rocco’s case and slow progress in researching and treating the rare disease, Girondi did his own extensive research. His discovery led him to form his own drug company to manufacture arginine butyrate, a new and apparently successful weapon against thalassemia, which he distributes free to patients around the world…