Can a Father’s Quest to Save his Son from a Crippling Disease Lead to Affordable Gene Therapy for All?

Mar 26, 2025 | News

Patrick Girondi, a former trader turned health advocate, is urging Health and Human Services Secretary Robert F. Kennedy Jr. and U.S. Attorney General Pam Bondi to investigate what he calls a decades-long conspiracy that blocked affordable gene therapy, costing lives and money.

Girondi, whose son Rocco has thalassemia, an inherited blood disorder, has for decades been on a mission to find an affordable cure. He says his company, San Rocco Therapeutics (SRT), could sell a cure for Thalassemia and Sickle Cell Disease for $800,000 per patient — far below the $3.1 million Lyfgenia, a drug made by Bluebird Bio…

 

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